Livewire: a place where
people just get it

Livewire: a place where people just get it

What is Livewire Online?

When you’re a teenager with a serious illness, not many people really get what you’re going through – and it can be hard for siblings too. That’s why we’ve created Livewire: a community for young people like you,who are dealing with some tricky stuff and can do with crew who understand and offer a little extra support

Online, Livewire is a place you can visit any time, knowing you’re always amongst friends who genuinely care. Here, you can swap stories, ask for ideas, and talk about whatever’s going on in your life, from operations, MRIs and scary tests, to issues you’re having with friends and family – even your frustration at missing out on getting to the beach because of another hospital visit!

Our Livewire chat hosts are always here to listen, support discussions, provide support, and there’s never any judgment. They love good Korero and chat! It’s social media as it should be: fun, safe and drama-free.

As well as connecting with people through chat rooms, Livewire also hooks you up with some interesting and fun stuff like blogs, competitions, articles and our very own TV channel, LivewireTV. Think of it as your escape hatch on those days you feel bored or just over it.

Powered by Starlight, if you live in Australia then Livewire can also help you with your Starlight Wish journey. For more info just click here.

Who can join?

Livewire is open to anyone aged 12-20 who’s living with a chronic health condition, serious illness, or a disability. Siblings are welcome too (after all, we know this illness stuff can seriously affect you as well). You just need to be living in Australia or New Zealand to join.

Get to know us

Wondering what kind of people you’ll meet through Livewire? Here’s
a sneak peek at a few of our awesome members. From Christchurch
to Darwin, these peeps get you!

Wondering what kind of people you’ll meet through Livewire? Here’s a sneak peek at a few of our awesome members. From Christchurch to Darwin, these peeps get you!

Bart – LW

Tell us about yourself 

Hey, I am Bart! I work as a Chat Host and Livewire In Hospital facilitator. As a chat-host, my role is to facilitate and monitor social interaction by members, encouraging all members to help create a safe and fun place for all other members. I also combine by roles online and In-Hospital to run creative competitions, exhibitions and encourage members to take part in many creative outlets, such as being involved with the Livewire Zine.

How long have you been on LW for? 

I have been with LW for over 5 years!

What does LW mean to you?

LW is a safe place for all young people with an illness of some kind, to engage in social interaction that may be lacking in their immediate lives, without the fear of being judged, criticized or misunderstood. It’s a space that offers many opportunities to young people, from gaining help, socially, to being offered the chance to guide and mentor others. I’m proud to be a part of a social media tool that is so positive.

Guide_Kathan (17)

Tell us about yourself
I’m interested in gaming, books, art, history and mythology, and old technology.
My diagnosis is Postural Orthostatic tachycardia syndrome, inappropriate sinus tachycardia, Functional dyspepsia, non-erosive Reflux Disease, cyclic neutropenia and more.

How long have you been on LW for?
I’ve been a Livewire member for over a year.

What does LW mean to you?
To me livewire means community and friendship, it’s a place where I can be myself and know that I’m not alone with dealing with chronic illness.

Guide_Serena (16)

Tell us about yourself
Hey, my name’s Serena. I have a bone disorder called Klippel-Feil syndrome, which means I have a fused neck and associated limb abnormalities. Anyone who’s spoken to me for more than five minutes would know I am obsessed with musicals! Particularly Hamilton, Dear Evan Hansen, In the Heights and Matilda. I also really love reading and writing and am obsessed with Harry Potter.

How long have you been on LW for?
I’ve been on Livewire for four and a bit years

What does LW mean to you?
I am so grateful to have met people who have similar interests to me on Livewire, but who also understand what I am going through. Livewire means so much to me and I log on almost every single day. Being a guide has given me the opportunity to give back to Livewire and Starlight. Chat soon x

Guide_Mealie (14)

Tell us about yourself
Hi I’m Amelia, or you can just call me Mealie.
I love musicals soooooo much! My favourites are: Heathers, Legally Blonde, Dear Evan Hansen, RENT, Rocky Horror and Bring It On! I’ve also been watching Pretty Little Liars on Netflix recently. Sooooo good! I have Cystic Fibrosis (a genetic lung disease) and Morquio Syndrome.

How long have you been on LW for?
I’ve been part of Livewire for 3 years

What does LW mean to you?
Whenever I think of Livewire, the word “family” comes to mind. Livewire is this massive online family where everyone supports each other. It’s a fun and happy community that I love being a part of.

Guide_AceStace (15)

Tell us about yourself
Hi I’m Stacey or Guide_AceStace, I’m 15 and was diagnosed with Hodgkin Lymphoma cancer in 2015.
I love my performing arts, it’s life! It’s the career I want to pursue and my one true passion and talent. I also love my art. I just love the power of imagination and being creative. Unicorns and glitter is also something you always see me talking about I just love it! I love to cook! From sweet to savoury I will almost try and cook everything! As well as that I am a scout and a keen netballer!

How long have you been on LW for?
I’ve been on Livewire for two years.

What does LW mean to you?
To me Livewire is a place for me to have fun and just be myself and not worry about the troubles of life. To be able to chat with amazing people who understand makes Livewire even more amazing! I’ve met so many people and it’s spectacular! Livewire is Awesome!

Guide_Jess (18)

Tell us about yourself
Hi, I’m Jessica, but you can call me Jess. I have Ehlers Danlos syndrome which is a connective tissue disorder. I have many interests but the main ones are musicals, photography and reading, though I’m pretty big on Netflix too. My favourite musicals are Hamilton, Kinky Boots and Newsies and my favourite thing to photograph is animals. I enjoy comedy or drama when watching tv/movies and I love reading, particularly Robyn Schneider and John Green’s books, or similar young adult books. 

How long have you been on LW for?
I’ve been part of Livewire for almost two years.

What does LW mean to you?
Livewire means I have a place I can be myself, not my illness. I can be who I am, and be proud of my achievements without judgement. I have made lasting friendships and developed the most amazing support network.

Is Livewire only online?

Nope, Livewire is rocking it in hospital wards across Australia too! As you probably know, being hospitalized in no fun at all – but our Livewire team are there to make things a little more bearable.

If you haven’t come across us in the hospital you visit, sit tight! We will soon be streaming activities straight to your computers, so you can be involved too.

So, what is Livewire like when it’s in the hospital? Well, throughout the day, our Livewire facilitator swing by the wards where young people are staying, just to say hey and see how you’re going. Then every evening, Livewire takes our the Starlight Express Rooms to run heaps of fun activities and creative workshops. Digital art, stop-motion animation, music, cooking, writing… you never know what you’ll get to do!

It’s all pretty chilled out and there’s no pressure to take part – but if you’re stuck in hospital or having treatment, it can be good to know Livewire is there.

A bit about Starlight

Livewire is a program run by Starlight, who have been
brightening lives of seriously ill and hospitalised
children, teens and their families since 1988. We have
programs running across Australia, including our
well-known Starlight Wishes, and Livewire – our leading program
for teenagers across Australia… and now, new Zealand!

Livewire is a program run by Starlight, who have been brightening lives of seriously ill and hospitalized children, teens and their families since 1988. We have programs running across Australia, including our well-known Starlight Wishes, and Livewire – our leading program
for teenagers across Australia… and now, new Zealand!

Pioneering Research

To learn more about our pioneering research
and development click here.

FAQs

Below are some standard frequently asked questions. Click on the
bottom icons to find a more details pdf.

When you’re a teenager with a serious illness, not many people really get what you’re going through – and it can be hard for siblings too. That’s why we’ve created Livewire: a community for young people like you, who are dealing with some tricky stuff and can do with crew who understand and offer a little extra support.

Online, Livewire is a place you can visit any time, knowing you’re always amongst friends who genuinely care and are all about the Aroha. Here, you can swap stories, ask for ideas, and talk about whatever’s going on in your life, from operations, MRIs and scary tests, to issues you’re having with friends and family – even your frustration at missing out on getting to the beach because of another hospital visit!

To connect, support and empower young people and their siblings affected by a serious illness, chronic health condition or disability.

  • Update your profile and connect with other members with similar interests
  • A fully-moderated chat room providing you with the opportunity to stay connected to other members who share similar experiences and meet new friends
  • Create blogs and share your thoughts
  • Read articles created just for you
  • Create a group or join a group tailored to your interests
  • Play games
  • Take part in events such as online quiz nights and meet special guests in the chat room like TV personalities, high profile sports people or well-known authors)

Ensuring that livewire remains safe and you feel supported is our top priority!

  • Livewire chat hosts are trained moderators who are on Livewire to make sure you are having fun always!
  • Every Livewire member is validated by our membership services team when they sign up. Young people under 18 require proof of identification in the form of a 100 point identity check from their parents or guardian within the first two weeks of registration in order to gain ongoing unrestricted access to Livewire.  Young people over 18 are contacted directly.

I’m aged 12-20

I’m a parent

I’m a Health Professional

Contact Us

Join Livewire today!